The Diastat works...

Over the past 2 weeks Beau has been going through major medication changes.  It's no wonder then that he had a long seizure last Saturday night.  It was rough to see another prolonged seizure but we did give him the Diastat for the first time and it did stop the seizure after about 6-7 minutes. Total, the seizure lasted about 12-13 minutes.  It was another quiet seizure that began with drool coming out of the corner of Beau's mouth.  From there it became full on chewing, drooling and his left leg began jerking.  It took so much out of him.  He woke up several times throughout the night, clearly having a headache from the seizure.  I gave him ibuprofen in the middle of the night and finally he was able to catch a little sleep.  Since Saturday though, we are completely off of the Tegretol and are on Keppra and Depakote.  So far (knock on wood) the new combination is keeping the seizures under control. 

When I spoke with the neurologist I discussed my concerns over the fact that lately his seizures had been affecting his left leg and not his right leg.  Knowing that there is a definite abnormality on the left side of the brain, we expect the right side of the body to be affected.  It worries me though, that he's having all of these problems with his left side.  She isn't certain at this point in time, but believes that it could just be affecting the left leg, like his right leg, because the abnormality is so close to the midline.  If that's not the case, and there is an abnormality on the right side of the brain as well, we may not have the option of surgery down the road.  Ugh.  This is all so confusing and I guess there's no use worrying about what we don't fully know yet.  More tests would provide us with those answers.  For now, we give time for the Depakote to work it's magic with the Keppra and we hope for no seizures.  Our next appointment with the neurologist is December 7th where I think we'll be able to learn a lot more about her plan for Beau.  We're a strong family and we can get through anything!