This blog is dedicated to my amazing son Beau. In 2009 he was diagnosed with Partial Agenesis of the Corpus Callosum (P-ACC) as well as Epilepsy. I write this as a way to educate, inform and relate to other families that raise special needs children. To read more about Beau, see the very first blog; "Let's Talk About Beau".
Beau
Tuesday, October 18, 2011
More seizures....
So after another big up in Beau's medication about 2 weeks ago, he has had more seizures. He had a seizure this past Friday night which lasted about one minute and involved his left leg. Last night he had 2 seizures. The first one involved just his right hand and it lasted about 3 minutes. He had a 4 minute break and then the 2nd seizure started and this one involved his left leg. It only lasted about 1 1/2 minutes. It's amazing to me how he is on so much medication and such high doses and it doesn't keep the seizures under control. It's hard to understand why all of the sudden these past couple months his body just isn't responding to the drugs. He went for a good long time without seizure activity and now it seems never ending. The process of drug adjustments and changes seems to be so tedious - as it should be - but it's so hard because as a parent you want to "fix" the problem immediately! I have put my full faith in our neurologist and pray that she finds the right "fix" for Beau Beau.
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I am so sorry friend. I hate seizures for sweet Beau! You are doing everything right...such an awesome mama you are. love you guys.
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