Beau

Beau
Our "Beau"tiful Blessing

Tuesday, October 25, 2011

Will they ever stop?

The seizures continue to strike!  They are hitting EVERY time Beau sleeps.  Over the last week they have only affected his left side during the seizure.  We seem to go in spurts of right leg one week then left leg next week.  His left leg is his stronger leg, but now it is just as weak as the right leg because of the daily seizures. When he walks it's very cautious and stiff looking.  It's breaking our heart to see this.  The one drug, carbamazepine was increased a lot lately but it clearly has no effect on the seizures.  Today started our first day on depakote.  For right now he is on keppra, depakote, and carbamazepine.  He was weaned off of the dilantin because he was on such a low dose and the neurologist didn't feel it was effective.  As of right now, I'm not sure when or if they will completely take him off of the carbamazepine.  I just have my instructions for this week.  It shows a decrease in the carbamazepine but not a complete removal of it yet.  I hope, for Beau's sake we can figure this out.  It's so hard to see what the drugs and the seizures do to his little body and yet somehow, through it all, he squeels and smiles.  I pray that one day - and hopefully one day soon - Mr. Beau gets some relief.  I know God takes good care of him so I just have to put my faith in that and in our neurologist.

1 comment:

  1. Hey! I just found you from the acc website. My daughter has acc and is 7 weeks old. I am a mon blogger also and I created a facebook page for raising awareness for acc too.

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